Fighting with Every Beat of Her Heart

Fighting with Every Beat of Her Heart

written by Mandi, Aubrey’s mom April 17, 2014 was the day our whole life changed. My husband, Paul, our oldest daughter Olivia, and I went in to find out the gender of our second sweet baby. We were so excited to find out that we would be adding another little girl to our family in […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Mighty Maximus

Mighty Maximus

written by Ashlen Johnson, Maximus’s father It has been almost 4 years now since the pediatrician first heard the heart murmur. Thinking about it now is pretty remarkable. We had no idea the journey we were about to embark on. Our son Maximus was a growing young kid, in the 90th percentile of everything. We had […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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A Bionic Heart of Gold

A Bionic Heart of Gold

written by Alaina, Lydia’s mother October 3rd, 2011 started like any other day. I went to work at an acute care hospital in Omaha where I was an occupational therapist. I took a late lunch to go to a 2 pm doctor’s appointment, keeping my pager with me for when I would return later in […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Unmapped Territory: Evelyn & Ethan’s CHD Journey

Unmapped Territory: Evelyn & Ethan’s CHD Journey

                      written by Missy McDermott, Ethan & Evelyn’s mom When Keith and I married seven years ago in July of 2009, we had a path mapped out in our minds of what we’d be adventuring through together as husband and wife and as future parents.  We […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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The World is Your Oyster: Heart Hero Zella Pearl

written by Tammy Denberg, Zella Pearl’s mother Our little miracle baby Zella Pearl was born on 11/20/15 weighing 8lbs 6oz.  She is our little miracle baby because first she is the only baby I have been able to carry to full term.  Lucas and I have battled with infertility for several years and at this […]

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A Mother’s Hero – Heart Hero Taye

written by Cori Bumgardner, Taye’s mother In August of 2013, at our 20-week ultrasound, the doctor told us our baby had a heart condition called Transposition of the Greater Arteries. This news was shocking and scary, as the doctor explained that our baby would need open-heart surgery as soon as he was born in order […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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This is Her Year: Heart Hero Lorissa

written by Lorissa Roepke, Heart Hero I often ask myself, “What is the best thing to ever happen to me?”, “What is the worst thing that has ever happened to me?”. These two questions swarm my mind and I come up with so many different answers. I am preparing for when someone actually asks me […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes, Organ Donation

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Jackson – God Has Been Gracious

Jackson – God Has Been Gracious

  written by Chelsea Katelman, Jackson’s mother Jackson Andrew Katelman was born the morning of May 25, 2015. The birth went just as planned. The amount of love that you instantly feel for your little one is unexplainable. We were so blessed to be Jackson’s parents and welcome him into the world. As far as […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Beatz of Courage – Complete Atrioventricular Block

Beatz of Courage – Complete Atrioventricular Block

Beatz of Courage ~ Get CHD Informed Complete Atrioventricular Block (3rd-degree Heart Block) – A delay in the conduction of electrical nerve impulses that regulate the rhythmic pumping action of the heart.  Heart Block can occur congenitally or it can be acquired, from damage to the muscle or electrical system. Some CHDs can even cause Heart […]

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Posted in: Advocacy, Awareness, Beats of Courage, CHD, CHD Awareness Month, Heart Angel, Heart Heroes

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Beatz of Courage – Coarctation of the Aorta

Beatz of Courage – Coarctation of the Aorta

Beatz of Courage ~ Get CHD Informed Coarctation of the Aorta (COA) – The narrowing of the aorta between the upper and lower body branches. This causes a narrowing or even a blockage. Symptoms of COA are typically high blood pressure in the right arm and upper body with weak pulse in the lower body. Isolated […]

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Posted in: Advocacy, Awareness, Beats of Courage, CHD, CHD Awareness Month, Heart Angel, Heart Heroes, Organ Donation

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