Superhero with a Special Heart

Superhero with a Special Heart

written by Amy, Alana’s mother Alana was born on July 22, 2011; three weeks before her due date and weighing 5 pounds, 11 ounces. She was a healthy baby (or so we thought) and didn’t even need to be in the NICU. We took her home two days later and she had no desire to […]

Continue Reading →

Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

Disability Benefits & CHD

Applying for Social Security Disability Benefits with a Congenital Heart Defect  by, Deanna Power I was born with Ebstein’s anomaly VSD. It’s actually two congenital heart defects (CHDs) in one: Not only is my right ventricle a little wonky, but I also have a small hole connecting two chambers of my heart. I needed surgery […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Education, Heart Heroes

Leave a Comment (0) →

Fighting with Every Beat of Her Heart

Fighting with Every Beat of Her Heart

written by Mandi, Aubrey’s mom April 17, 2014 was the day our whole life changed. My husband, Paul, our oldest daughter Olivia, and I went in to find out the gender of our second sweet baby. We were so excited to find out that we would be adding another little girl to our family in […]

Continue Reading →

Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

Mighty Maximus

Mighty Maximus

written by Ashlen Johnson, Maximus’s father It has been almost 4 years now since the pediatrician first heard the heart murmur. Thinking about it now is pretty remarkable. We had no idea the journey we were about to embark on. Our son Maximus was a growing young kid, in the 90th percentile of everything. We had […]

Continue Reading →

Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

A Bionic Heart of Gold

A Bionic Heart of Gold

written by Alaina, Lydia’s mother October 3rd, 2011 started like any other day. I went to work at an acute care hospital in Omaha where I was an occupational therapist. I took a late lunch to go to a 2 pm doctor’s appointment, keeping my pager with me for when I would return later in […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

Unmapped Territory: Evelyn & Ethan’s CHD Journey

Unmapped Territory: Evelyn & Ethan’s CHD Journey

                      written by Missy McDermott, Ethan & Evelyn’s mom When Keith and I married seven years ago in July of 2009, we had a path mapped out in our minds of what we’d be adventuring through together as husband and wife and as future parents.  We […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

The World is Your Oyster: Heart Hero Zella Pearl

written by Tammy Denberg, Zella Pearl’s mother Our little miracle baby Zella Pearl was born on 11/20/15 weighing 8lbs 6oz.  She is our little miracle baby because first she is the only baby I have been able to carry to full term.  Lucas and I have battled with infertility for several years and at this […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

A Mother’s Hero – Heart Hero Taye

written by Cori Bumgardner, Taye’s mother In August of 2013, at our 20-week ultrasound, the doctor told us our baby had a heart condition called Transposition of the Greater Arteries. This news was shocking and scary, as the doctor explained that our baby would need open-heart surgery as soon as he was born in order […]

Continue Reading →

Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

This is Her Year: Heart Hero Lorissa

written by Lorissa Roepke, Heart Hero I often ask myself, “What is the best thing to ever happen to me?”, “What is the worst thing that has ever happened to me?”. These two questions swarm my mind and I come up with so many different answers. I am preparing for when someone actually asks me […]

Continue Reading →

Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes, Organ Donation

Leave a Comment (0) →

Jackson – God Has Been Gracious

Jackson – God Has Been Gracious

  written by Chelsea Katelman, Jackson’s mother Jackson Andrew Katelman was born the morning of May 25, 2015. The birth went just as planned. The amount of love that you instantly feel for your little one is unexplainable. We were so blessed to be Jackson’s parents and welcome him into the world. As far as […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →
Page 2 of 11 12345...»