One Heart: Talia

One Heart: Talia

    Meet Talia! This five-year-old Heart Hero lives in Omaha, Nebraska and was born with Hypoplastic Right Heart Syndrome (HRHS).  HRHS is a rare congenital heart defect in which the right side of the heart is underdeveloped, including the pulmonary valve, right ventricle, and tricuspid valve. Talia’s CHD was diagnosed in-utero and at 29 weeks […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Xander

One Heart: Xander

  Xander was born on August 15, 2014 with several congenital heart defects. Xander lives in Jenison, Michigan and has Double Outlet Right Ventricle (DORV), Single Ventricle, and Pulmonary Stenosis.  When both the pulmonary artery and aorta arise from the right ventricle, it is called DORV.  In addition, Xander was born with only one ventricle […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Heart Angel Chance

One Heart: Heart Angel Chance

    Chance Liem Karter Jean is a Heart Angel from Philadelphia, Pennsylvania. In his seven short weeks of life, he touched a lot of hearts and made a big impact within the CHD community. Chance was born with Aortic Stenosis and Ventricular Septal Defect (VSD).  The aorta takes oxygenated blood from the heart to […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Angel, Heart Hero of the Month, One Heart

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One Heart: Teddy

One Heart: Teddy

Teddy is a five-year-old Heart Hero who was born with Ventricular Inversion- Left Transposition and Transposition of the Great Arteries (TGA). Teddy’s left and right ventricles were reversed (ventricular inversion) and the aorta and pulmonary were connected to the wrong vetricles (TGA).  Teddy lives in Lincoln, Nebraska with his family. He has undergone three surgeries […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Justin

One Heart: Justin

    This Heart Hero is Justin and he is from Springfield, Pennsylvania. Justin is seven years old and was born with Bicuspid Aortic Valve. The aortic valve only had two valves (rather than three). This condition caused aortic valve stenosis (the aortic valve does not open fully) and aortic insufficiency (aortic valve not closing tightly). Justin […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Isabella-Sophia

One Heart: Isabella-Sophia

    This little beauty is Isabella-Sophia – she is one and lives in Phoenix, Arizona. Isabella-Sophia was diagnosed with Transposition of the Great Arteries (TGA), Double Outlet Right Ventricle (DORV), Atrial Septal Defect (ASD), Ventricular Septal Defect (VSD), and Pulmonary Stenosis. Multiple diagnoses are not that uncommon among kids with CHD, and Isabella-Sophia is […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: David

One Heart: David

    This five-year-old Heart Hero is David, from Heart Heroes’ hometown of Omaha, Nebraska! David was born with Transposition of the Great Vessels with four holes in his heart. This means that David’s pulmonary artery and aorta were switched within his heart (transposed), bringing blood to the lungs to get oxygenated, returning to the […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Heart Angel Grayson James

One Heart: Heart Angel Grayson James

    Grayson was born on November 9, 2013 in Royalton, Minnesota. He was diagnosed with Pulmonary Vein Stenosis, Atrial Septal Defect (ASD), Long QT Syndrome, Pulmonary Artery Stenosis, Hypoplastic Right Ventricle, and Pulmonary Hypertension. Long QT Syndrome is a heart rhythm disorder that causes fast heartbeats. Pulmonary Vein Stenosis means that there was a […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Angel, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Leah

One Heart: Leah

    Leah is a 33-year-old Heart Hero from Minneapolis, Kansas. She was born with Atrial Septal Defect (ASD) and a torn mitral valve. In the upper chambers of the heart (the atria), there is a wall separating the chambers, called a septum.  ASD occurs when there is a hole in the wall, allowing more […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Duncan

One Heart: Duncan

    Duncan is 3-years-old and was born with Coarctation of the Aorta and Bicuspid Aortic Valve. Coarctation of the Aorta is a congenital heart defect where the aorta is narrowed and a bicuspid aortic valve only has two valves, instead of the normal three valves. Duncan is a Heart Hero from Omaha, Nebraska. At […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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