One Heart: Duncan

One Heart: Duncan

    Duncan is 3-years-old and was born with Coarctation of the Aorta and Bicuspid Aortic Valve. Coarctation of the Aorta is a congenital heart defect where the aorta is narrowed and a bicuspid aortic valve only has two valves, instead of the normal three valves. Duncan is a Heart Hero from Omaha, Nebraska. At […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Cole

One Heart: Cole

    Cole is a 12-year old Heart Hero who hails from Papillion, Nebraska! Cole has Truncus Arteriosus with Right Aortic Arch. During the formation of the heart, the aorta and pulmonary artery start out as a great “truncal valve”. Truncus Arteriosus is a defect of the heart in which the aorta and pulmonary do not […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart, Pulse Ox

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One Heart: Lily

One Heart: Lily

    Lovely Lily is an 8-month old Heart Hero from Conroe, Texas. She was born with Tetralogy of Fallot (TOF) with Ventricular Septal Defect (VSD).  Tetralogy of Fallot is a congenital heart defect in which the aorta is enlarged and comes from the left and right ventricles (overriding aorta), narrowing of the pulmonary valve […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Grace

One Heart: Grace

      This beautiful girl is a Heart Hero from Shirleysburg, Pennsylvania.  Her name is Grace.  She is four years old and has Tetralogy of Fallot with Pulmonary Atresia, Hypoplastic Pulmonary Arteries, and Major Aortopulmonary Collateral Arteries (MAPCAs).  Tetraolgy of Fallot is a CHD that usually presents with a combination of four related heart […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Heart Angel Hayden

One Heart: Heart Angel Hayden

    Heart Angel Hayden Liam was born in May 2014 with Hypoplastic Left Heart Syndrome (HLHS). He was a fighter from the beginning, going through both the Norwood and Glenn open-heart surgeries, as well as a G-tube placement, the Nissan surgery, a diaphragm placation surgery, and three heart catheterization procedures in his five short months […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Angel, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Brody

One Heart: Brody

    Meet Brody. This two-year old Heart Hero is from Panama City, Florida and has a CHD diagnosis of Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis, which is the thickening of the muscular lining of the heart chambers.  Brody has had the Norwood Procedure (first stage of three open-heart surgeries to repair HLHS) […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Ava

One Heart: Ava

    Ava Elizabeth was born on November 11th, 2012 with a genetic syndrome called 4Q Deletion.  With 4Q Deletion, part of the fourth chromosome is missing and can result in congenital heart defects as well as other symptoms.  Ava has Hypoplastic Right Heart Syndrome (HRHS) and Pulmonary Atresia.  She is also missing her left hand […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Parker J

One Heart: Parker J

    Parker J. is a two-year-old Heart Hero from Kearney, Nebraska. Like many kids with heart defects, he has several CHD diagnoses. Parker has Total Anomalous Pulmonary Venous Return (TAPVR), Mesocardia, Transposition of the Great Arteries, Mitral Atresia, and Double Outlet Right Ventricle (DORV). In TAPVR, the four pulmonary veins do not connect normally to […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Crystal

One Heart: Crystal

      Crystal Flores is a CHD advocate, public speaker, and Heart Hero from Los Angeles, California. Crystal is 27 and her CHD journey began when she was an infant. Crystal’s mother noticed that Crystal’s skin, nail beds, and lips would turn blue at times and she had trouble breathing. She took the baby […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, In the News, One Heart, Pulse Ox

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One Heart: Ryker

One Heart: Ryker

  Meet Ryker Lee. He is a Heart Hero from Gilbert, Arizona and is one year old.   Ryker was born with congenital heart defects called Tricuspid Dysplasia, Ebstein’s Anomaly, Pulmonary Artresia, and Atrial Septal Defect (ASD). Ebstein’s Anomaly affects the tricuspid valve and can cause blood to flow back into the heart instead of flowing […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, Heroes Helping Heroes, One Heart

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