Archive for Advocacy

A Journey of Unconditional Love, CHD and HOPE

A Journey of Unconditional Love, CHD and HOPE

written by Kristi Unick, Keyan’s mother Hypoplastic Left Heart Syndrome, Restricted Atrial Septum, Congenital Heart Defects.  Before early November 2009 I had never heard those words, nor did I know at that time being thrusted in to the Heart World would change and shape me as a person. On January 20th, 2010 I gave birth […]

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Posted in: Advocacy, Awareness, CHD, Education, Heart Angel, Heart Hero of the Month, Heart Heroes

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Disability Benefits & CHD

Applying for Social Security Disability Benefits with a Congenital Heart Defect  by, Deanna Power I was born with Ebstein’s anomaly VSD. It’s actually two congenital heart defects (CHDs) in one: Not only is my right ventricle a little wonky, but I also have a small hole connecting two chambers of my heart. I needed surgery […]

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Posted in: Advocacy, Awareness, CHD, Education, Heart Heroes

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A Bionic Heart of Gold

A Bionic Heart of Gold

written by Alaina, Lydia’s mother October 3rd, 2011 started like any other day. I went to work at an acute care hospital in Omaha where I was an occupational therapist. I took a late lunch to go to a 2 pm doctor’s appointment, keeping my pager with me for when I would return later in […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Unmapped Territory: Evelyn & Ethan’s CHD Journey

Unmapped Territory: Evelyn & Ethan’s CHD Journey

                      written by Missy McDermott, Ethan & Evelyn’s mom When Keith and I married seven years ago in July of 2009, we had a path mapped out in our minds of what we’d be adventuring through together as husband and wife and as future parents.  We […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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The World is Your Oyster: Heart Hero Zella Pearl

written by Tammy Denberg, Zella Pearl’s mother Our little miracle baby Zella Pearl was born on 11/20/15 weighing 8lbs 6oz.  She is our little miracle baby because first she is the only baby I have been able to carry to full term.  Lucas and I have battled with infertility for several years and at this […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Jackson – God Has Been Gracious

Jackson – God Has Been Gracious

  written by Chelsea Katelman, Jackson’s mother Jackson Andrew Katelman was born the morning of May 25, 2015. The birth went just as planned. The amount of love that you instantly feel for your little one is unexplainable. We were so blessed to be Jackson’s parents and welcome him into the world. As far as […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Beatz of Courage – Complete Atrioventricular Block

Beatz of Courage – Complete Atrioventricular Block

Beatz of Courage ~ Get CHD Informed Complete Atrioventricular Block (3rd-degree Heart Block) – A delay in the conduction of electrical nerve impulses that regulate the rhythmic pumping action of the heart.  Heart Block can occur congenitally or it can be acquired, from damage to the muscle or electrical system. Some CHDs can even cause Heart […]

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Posted in: Advocacy, Awareness, Beats of Courage, CHD, CHD Awareness Month, Heart Angel, Heart Heroes

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Beatz of Courage – Coarctation of the Aorta

Beatz of Courage – Coarctation of the Aorta

Beatz of Courage ~ Get CHD Informed Coarctation of the Aorta (COA) – The narrowing of the aorta between the upper and lower body branches. This causes a narrowing or even a blockage. Symptoms of COA are typically high blood pressure in the right arm and upper body with weak pulse in the lower body. Isolated […]

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Posted in: Advocacy, Awareness, Beats of Courage, CHD, CHD Awareness Month, Heart Angel, Heart Heroes, Organ Donation

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Beatz of Courage – Atrial Septal Defect

Beatz of Courage – Atrial Septal Defect

Beatz of Courage ~ Get CHD Informed Atrial Septal Defect (ASD) –  A “hole” in the heart in the septum between the heart’s two upper chambers (atria). An ASD allows oxygenated blood to become mixed with unoxygenated blood. The oxygenated blood recirculates to the lungs without becoming further oxygenated. Most ASDs need to be closed by surgical repair, in […]

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Posted in: Advocacy, Awareness, Beats of Courage, CHD, CHD Awareness Month, Heart Angel, Heart Hero of the Month, Heart Heroes

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Beatz of Courage – Aortic Valve Stenosis & Regurgitation

Beatz of Courage – Aortic Valve Stenosis & Regurgitation

Beatz of Courage ~ Get CHD Informed Aortic Valve Stenosis & Regurgitation (AVS) – The thin leaflets that make up the arotic valve are fused or are too thick, making it narrow and cause obstruction to blood flow out of the heart. This causes the heart to work harder to pump blood to the body. Congenital […]

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Posted in: Advocacy, Awareness, Beats of Courage, CHD, CHD Awareness Month, Heart Angel, Heart Heroes

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