Archive for Advocacy

Heart Hero Abby Grace

Heart Hero Abby Grace

  written by Sarah, Abby Grace’s mom   Abby Grace is a hero in so many ways. She was born in China in August of 2014. We have two boys from Ethiopia and knew that we wanted to grow our family through adoption again and started looking at children that were on waiting lists. Many […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Education, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

Overcoming Obstacles: Heart Hero Jermaine

  Hello, My name is Jermaine Napier. I was born July 3 1986, and five months after my birth, was diagnosed with a Congenital Heart Defect (CHD).  Mine is  known as Shone’s Complex. Dealing with Shone’s, I endured two open heart surgeries, the first at five months and the second at three years old. Normally […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (13) →

Life of Knuckles: Heart Angel Aeden

  It was early October 2009, I was 22 weeks pregnant, and started bleeding.  My membranes ruptured and the embryonic sac was falling out, because I have an incompetent cervix.  I was rushed to Bergan Mercy Hospital in Omaha, Nebraska.  They did everything in their power to keep the baby in utero.  I stayed in […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Heart Angel, Heart Hero of the Month, Heart Heroes

Leave a Comment (2) →

QuickSilver: The Unstoppable Heart Hero

written by Adina, Silver’s mother At Silver’s two year physical her PCP told me she heard a “heart murmur” and referred her to a cardiologist. The first cardiologist we saw did an echo and all I was told was that she had an extra blood vessel. A few months later I was able to get […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Education, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

#Heartbeat: Heart Hero Ben

Written by: Amanda Lawson  I would like to give you a glimpse into why the heartbeat of my family is so strong. It all begins with the birth of a little boy, many years ago who was born with a broken heart. My husband was born with a Congenital Heart Defect called Transposition of the […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (1) →

Christian the Crusader

Christian the Crusader

written by Jacki Oleskey, Christian’s mother      Our journey began at a 20 week ultrasound that I was at because they had detected fibroids at a previous ultrasound. Before the doctor could even get to that part, we were told that there might be a problem with our son’s heart. We followed up the […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

A Journey of Unconditional Love, CHD and HOPE

A Journey of Unconditional Love, CHD and HOPE

written by Kristi Unick, Keyan’s mother Hypoplastic Left Heart Syndrome, Restricted Atrial Septum, Congenital Heart Defects.  Before early November 2009 I had never heard those words, nor did I know at that time being thrusted in to the Heart World would change and shape me as a person. On January 20th, 2010 I gave birth […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Education, Heart Angel, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

Disability Benefits & CHD

Applying for Social Security Disability Benefits with a Congenital Heart Defect  by, Deanna Power I was born with Ebstein’s anomaly VSD. It’s actually two congenital heart defects (CHDs) in one: Not only is my right ventricle a little wonky, but I also have a small hole connecting two chambers of my heart. I needed surgery […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Education, Heart Heroes

Leave a Comment (0) →

A Bionic Heart of Gold

A Bionic Heart of Gold

written by Alaina, Lydia’s mother October 3rd, 2011 started like any other day. I went to work at an acute care hospital in Omaha where I was an occupational therapist. I took a late lunch to go to a 2 pm doctor’s appointment, keeping my pager with me for when I would return later in […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

Unmapped Territory: Evelyn & Ethan’s CHD Journey

Unmapped Territory: Evelyn & Ethan’s CHD Journey

                      written by Missy McDermott, Ethan & Evelyn’s mom When Keith and I married seven years ago in July of 2009, we had a path mapped out in our minds of what we’d be adventuring through together as husband and wife and as future parents.  We […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →
Page 1 of 5 12345