Archive for CHD

Heart Goes On

Heart Goes On

written by Heart Hero Lauren Hi! I’m Lauren and I’m 11 years old. I just received my 2nd heart transplant on my 11th birthday-March 11, 2015. I was born with Hypoplastic Left Heart Syndrome and was treated at Arkansas Children’s Hospital. Helping a child live with HLHS requires a three-stage surgery usually done over the […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes, Heroes Helping Heroes, Organ Donation

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Hearts for Heroes

Hearthside Food Solutions is a food manufacturing company based out of Illinois, with locations in Grand Rapids, McComb, and Michigan City, Michigan, and also in Wilmar, Minnesota.  Procurement Analyst Donna Schultz was in charge of launching a fundraising campaign at the Grand Rapids Campus.  Donna knew her friend and coworker, Crystal, had a son born with […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Fundraisers, Hearts for Heroes, Heroes Helping Heroes, One Heart, Superhero Heart Run

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Accept No Substitutes

The one and only, “official” Heart Hero Cape can only be obtained from Heart Heroes, Inc., or from a licensed partner.  Heart Heroes, Inc. has trademarked the Heart Hero Cape to preserve its authenticity and purpose.  It is important to know that any cape marketed as a “Heart Hero Cape” that does not bear the exclusive […]

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Posted in: Advocacy, Awareness, CHD, Heart Heroes

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The Heart of a Hero – Jaxson’s Story

  written by Carolyn Turner, Jaxson’s mom Jaxson Zane Turner was born on October 16, 2013.  From his birth, Jaxson suffered from severe reflux and aspiration issues.  At Jaxson’s doctor’s appointments, we brought it up with the pediatrician.  We were told it was nothing to worry about and that he would out grow it. My son […]

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Posted in: Awareness, CHD, Heart Angel, Heart Heroes, Heroes Helping Heroes, Organ Donation

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One Heart: Parker S.

One Heart: Parker S.

      Parker was born in Texas in 2007. As her parents prepared to take her home from the hospital, the pediatrician told them they’d like to do an echocardiogram of Parker’s heart to follow-up on a heart murmur they had detected. Within hours, Parker’s parents learned that their newborn daughter had a very severe […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Wyatt

One Heart:  Wyatt

    This handsome Heart Hero is Wyatt, from Elkhorn, Nebraska! Wyatt is eleven months old and born with several complex congenital heart defects (CCHD)- Atrioventricular Septal Defect (AVSD), Subaortic Stenosis, Left Ventricular Non-Compaction, and Complete Heart Block. He has also been diagnosed with Heterotaxy Syndrome (left atrial isomerism) with Polysplenia. AVSD is a malformation […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Talia

One Heart: Talia

    Meet Talia! This five-year-old Heart Hero lives in Omaha, Nebraska and was born with Hypoplastic Right Heart Syndrome (HRHS).  HRHS is a rare congenital heart defect in which the right side of the heart is underdeveloped, including the pulmonary valve, right ventricle, and tricuspid valve. Talia’s CHD was diagnosed in-utero and at 29 weeks […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Xander

One Heart: Xander

  Xander was born on August 15, 2014 with several congenital heart defects. Xander lives in Jenison, Michigan and has Double Outlet Right Ventricle (DORV), Single Ventricle, and Pulmonary Stenosis.  When both the pulmonary artery and aorta arise from the right ventricle, it is called DORV.  In addition, Xander was born with only one ventricle […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Heart Angel Chance

One Heart: Heart Angel Chance

    Chance Liem Karter Jean is a Heart Angel from Philadelphia, Pennsylvania. In his seven short weeks of life, he touched a lot of hearts and made a big impact within the CHD community. Chance was born with Aortic Stenosis and Ventricular Septal Defect (VSD).  The aorta takes oxygenated blood from the heart to […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Angel, Heart Hero of the Month, One Heart

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One Heart: Teddy

One Heart: Teddy

Teddy is a five-year-old Heart Hero who was born with Ventricular Inversion- Left Transposition and Transposition of the Great Arteries (TGA). Teddy’s left and right ventricles were reversed (ventricular inversion) and the aorta and pulmonary were connected to the wrong vetricles (TGA).  Teddy lives in Lincoln, Nebraska with his family. He has undergone three surgeries […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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