Archive for Education

QuickSilver: The Unstoppable Heart Hero

written by Adina, Silver’s mother At Silver’s two year physical her PCP told me she heard a “heart murmur” and referred her to a cardiologist. The first cardiologist we saw did an echo and all I was told was that she had an extra blood vessel. A few months later I was able to get […]

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Posted in: Advocacy, Awareness, CHD, Education, Heart Hero of the Month, Heart Heroes

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Super Trooper Lukas

  written by Lukas’s mother Lukas Hoeft was born June 25th 2013 via c-section. A nurse at Providence Hospital in Novi, Michigan heard a heart murmur shortly after birth. His pulmonary valve was completely fused shut. The doctors were able to administer medication to keep his bypass open that typically closes shortly after birth. He […]

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Posted in: Awareness, CHD, Education, Heart Hero of the Month, Heart Heroes

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A Journey of Unconditional Love, CHD and HOPE

A Journey of Unconditional Love, CHD and HOPE

written by Kristi Unick, Keyan’s mother Hypoplastic Left Heart Syndrome, Restricted Atrial Septum, Congenital Heart Defects.  Before early November 2009 I had never heard those words, nor did I know at that time being thrusted in to the Heart World would change and shape me as a person. On January 20th, 2010 I gave birth […]

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Posted in: Advocacy, Awareness, CHD, Education, Heart Angel, Heart Hero of the Month, Heart Heroes

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Disability Benefits & CHD

Applying for Social Security Disability Benefits with a Congenital Heart Defect  by, Deanna Power I was born with Ebstein’s anomaly VSD. It’s actually two congenital heart defects (CHDs) in one: Not only is my right ventricle a little wonky, but I also have a small hole connecting two chambers of my heart. I needed surgery […]

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Posted in: Advocacy, Awareness, CHD, Education, Heart Heroes

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