Archive for Heart Angel

Life of Knuckles: Heart Angel Aeden

  It was early October 2009, I was 22 weeks pregnant, and started bleeding.  My membranes ruptured and the embryonic sac was falling out, because I have an incompetent cervix.  I was rushed to Bergan Mercy Hospital in Omaha, Nebraska.  They did everything in their power to keep the baby in utero.  I stayed in […]

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Posted in: Advocacy, Awareness, CHD, Heart Angel, Heart Hero of the Month, Heart Heroes

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A Journey of Unconditional Love, CHD and HOPE

A Journey of Unconditional Love, CHD and HOPE

written by Kristi Unick, Keyan’s mother Hypoplastic Left Heart Syndrome, Restricted Atrial Septum, Congenital Heart Defects.  Before early November 2009 I had never heard those words, nor did I know at that time being thrusted in to the Heart World would change and shape me as a person. On January 20th, 2010 I gave birth […]

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Posted in: Advocacy, Awareness, CHD, Education, Heart Angel, Heart Hero of the Month, Heart Heroes

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Courageous & Caring: Heart Hero Jackson

Courageous & Caring: Heart Hero Jackson

written by Stacie Orsini Jackson Thomas (J.T.) Sordi 07/10/03 – 07/26/03 In July of 2001, my husband Roman and I moved to Lewes, Delaware from Pittsburgh, PA to start our life together. He had just finished residency and we were ready to move on to the next chapter of our life. Shortly after our move, we […]

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Posted in: Awareness, CHD, Heart Angel, Heart Hero of the Month, Heart Heroes

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Beatz of Courage – Complete Atrioventricular Block

Beatz of Courage – Complete Atrioventricular Block

Beatz of Courage ~ Get CHD Informed Complete Atrioventricular Block (3rd-degree Heart Block) – A delay in the conduction of electrical nerve impulses that regulate the rhythmic pumping action of the heart.  Heart Block can occur congenitally or it can be acquired, from damage to the muscle or electrical system. Some CHDs can even cause Heart […]

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Posted in: Advocacy, Awareness, Beats of Courage, CHD, CHD Awareness Month, Heart Angel, Heart Heroes

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Beatz of Courage – Coarctation of the Aorta

Beatz of Courage – Coarctation of the Aorta

Beatz of Courage ~ Get CHD Informed Coarctation of the Aorta (COA) – The narrowing of the aorta between the upper and lower body branches. This causes a narrowing or even a blockage. Symptoms of COA are typically high blood pressure in the right arm and upper body with weak pulse in the lower body. Isolated […]

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Posted in: Advocacy, Awareness, Beats of Courage, CHD, CHD Awareness Month, Heart Angel, Heart Heroes, Organ Donation

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Beatz of Courage – Atrial Septal Defect

Beatz of Courage – Atrial Septal Defect

Beatz of Courage ~ Get CHD Informed Atrial Septal Defect (ASD) –  A “hole” in the heart in the septum between the heart’s two upper chambers (atria). An ASD allows oxygenated blood to become mixed with unoxygenated blood. The oxygenated blood recirculates to the lungs without becoming further oxygenated. Most ASDs need to be closed by surgical repair, in […]

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Posted in: Advocacy, Awareness, Beats of Courage, CHD, CHD Awareness Month, Heart Angel, Heart Hero of the Month, Heart Heroes

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Beatz of Courage – Aortic Valve Stenosis & Regurgitation

Beatz of Courage – Aortic Valve Stenosis & Regurgitation

Beatz of Courage ~ Get CHD Informed Aortic Valve Stenosis & Regurgitation (AVS) – The thin leaflets that make up the arotic valve are fused or are too thick, making it narrow and cause obstruction to blood flow out of the heart. This causes the heart to work harder to pump blood to the body. Congenital […]

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Posted in: Advocacy, Awareness, Beats of Courage, CHD, CHD Awareness Month, Heart Angel, Heart Heroes

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Georgia Bean

Georgia Bean

written by Grandma Laurie, Georgia’s grandmother   Georgia Grace Weiner 4/20/2015 – 4/24/2015 Heart Angel   This is the story of a sweet little Heart Angel named Georgia Grace Weinert, affectionately known as Georgia Bean.  Georgia is my granddaughter.  Born on April 20, 2015 and passed on April 24, 2015.  Four little days and let […]

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Posted in: Awareness, CHD, Heart Angel, Heart Hero of the Month, Heart Heroes

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The Heart of a Hero – Jaxson’s Story

  written by Carolyn Turner, Jaxson’s mom Jaxson Zane Turner was born on October 16, 2013.  From his birth, Jaxson suffered from severe reflux and aspiration issues.  At Jaxson’s doctor’s appointments, we brought it up with the pediatrician.  We were told it was nothing to worry about and that he would out grow it. My son […]

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Posted in: Awareness, CHD, Heart Angel, Heart Heroes, Heroes Helping Heroes, Organ Donation

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One Heart: Heart Angel Chance

One Heart: Heart Angel Chance

    Chance Liem Karter Jean is a Heart Angel from Philadelphia, Pennsylvania. In his seven short weeks of life, he touched a lot of hearts and made a big impact within the CHD community. Chance was born with Aortic Stenosis and Ventricular Septal Defect (VSD).  The aorta takes oxygenated blood from the heart to […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Angel, Heart Hero of the Month, One Heart

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