Archive for Heart Hero of the Month

Heart Hero Abby Grace

Heart Hero Abby Grace

  written by Sarah, Abby Grace’s mom   Abby Grace is a hero in so many ways. She was born in China in August of 2014. We have two boys from Ethiopia and knew that we wanted to grow our family through adoption again and started looking at children that were on waiting lists. Many […]

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Posted in: Advocacy, Awareness, CHD, Education, Heart Hero of the Month, Heart Heroes

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Overcoming Obstacles: Heart Hero Jermaine

  Hello, My name is Jermaine Napier. I was born July 3 1986, and five months after my birth, was diagnosed with a Congenital Heart Defect (CHD).  Mine is  known as Shone’s Complex. Dealing with Shone’s, I endured two open heart surgeries, the first at five months and the second at three years old. Normally […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Life of Knuckles: Heart Angel Aeden

  It was early October 2009, I was 22 weeks pregnant, and started bleeding.  My membranes ruptured and the embryonic sac was falling out, because I have an incompetent cervix.  I was rushed to Bergan Mercy Hospital in Omaha, Nebraska.  They did everything in their power to keep the baby in utero.  I stayed in […]

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Posted in: Advocacy, Awareness, CHD, Heart Angel, Heart Hero of the Month, Heart Heroes

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QuickSilver: The Unstoppable Heart Hero

written by Adina, Silver’s mother At Silver’s two year physical her PCP told me she heard a “heart murmur” and referred her to a cardiologist. The first cardiologist we saw did an echo and all I was told was that she had an extra blood vessel. A few months later I was able to get […]

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Posted in: Advocacy, Awareness, CHD, Education, Heart Hero of the Month, Heart Heroes

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Hope Shines Bright: Heart Hero Paisley

written by Joanna, Paisley’s mom   We had two children who came to us through the beauty of adoption, and we decided to add to our family in the Spring of 2014… when we saw Paisley’s little face, we fell in love with her, and we knew she was meant to be our daughter. We […]

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Posted in: Adoption, CHD, Heart Hero of the Month, Heart Heroes

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#Heartbeat: Heart Hero Ben

Written by: Amanda Lawson  I would like to give you a glimpse into why the heartbeat of my family is so strong. It all begins with the birth of a little boy, many years ago who was born with a broken heart. My husband was born with a Congenital Heart Defect called Transposition of the […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Christian the Crusader

Christian the Crusader

written by Jacki Oleskey, Christian’s mother      Our journey began at a 20 week ultrasound that I was at because they had detected fibroids at a previous ultrasound. Before the doctor could even get to that part, we were told that there might be a problem with our son’s heart. We followed up the […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Super Trooper Lukas

  written by Lukas’s mother Lukas Hoeft was born June 25th 2013 via c-section. A nurse at Providence Hospital in Novi, Michigan heard a heart murmur shortly after birth. His pulmonary valve was completely fused shut. The doctors were able to administer medication to keep his bypass open that typically closes shortly after birth. He […]

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Posted in: Awareness, CHD, Education, Heart Hero of the Month, Heart Heroes

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A Journey of Unconditional Love, CHD and HOPE

A Journey of Unconditional Love, CHD and HOPE

written by Kristi Unick, Keyan’s mother Hypoplastic Left Heart Syndrome, Restricted Atrial Septum, Congenital Heart Defects.  Before early November 2009 I had never heard those words, nor did I know at that time being thrusted in to the Heart World would change and shape me as a person. On January 20th, 2010 I gave birth […]

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Posted in: Advocacy, Awareness, CHD, Education, Heart Angel, Heart Hero of the Month, Heart Heroes

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Courageous & Caring: Heart Hero Jackson

Courageous & Caring: Heart Hero Jackson

written by Stacie Orsini Jackson Thomas (J.T.) Sordi 07/10/03 – 07/26/03 In July of 2001, my husband Roman and I moved to Lewes, Delaware from Pittsburgh, PA to start our life together. He had just finished residency and we were ready to move on to the next chapter of our life. Shortly after our move, we […]

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Posted in: Awareness, CHD, Heart Angel, Heart Hero of the Month, Heart Heroes

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