Archive for Heart Hero of the Month

Jackson – God Has Been Gracious

Jackson – God Has Been Gracious

  written by Chelsea Katelman, Jackson’s mother Jackson Andrew Katelman was born the morning of May 25, 2015. The birth went just as planned. The amount of love that you instantly feel for your little one is unexplainable. We were so blessed to be Jackson’s parents and welcome him into the world. As far as […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Beatz of Courage – Atrial Septal Defect

Beatz of Courage – Atrial Septal Defect

Beatz of Courage ~ Get CHD Informed Atrial Septal Defect (ASD) –  A “hole” in the heart in the septum between the heart’s two upper chambers (atria). An ASD allows oxygenated blood to become mixed with unoxygenated blood. The oxygenated blood recirculates to the lungs without becoming further oxygenated. Most ASDs need to be closed by surgical repair, in […]

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Posted in: Advocacy, Awareness, Beats of Courage, CHD, CHD Awareness Month, Heart Angel, Heart Hero of the Month, Heart Heroes

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The Heart of a Fighter

  written by Ashley Gastelum-Calvo, Javi’s mother Javier Isait Reyes-Medina Jr. was born June 30, 2015 at 10:29 p.m. He was four pounds, 11 ounces and 18 inches long. He was my third, but my first with my fiancée, and the first boy in his family. So to say the least, we were very excited. […]

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Georgia Bean

Georgia Bean

written by Grandma Laurie, Georgia’s grandmother   Georgia Grace Weiner 4/20/2015 – 4/24/2015 Heart Angel   This is the story of a sweet little Heart Angel named Georgia Grace Weinert, affectionately known as Georgia Bean.  Georgia is my granddaughter.  Born on April 20, 2015 and passed on April 24, 2015.  Four little days and let […]

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Posted in: Awareness, CHD, Heart Angel, Heart Hero of the Month, Heart Heroes

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Little Superman: Heart Hero Christian

Little Superman: Heart Hero Christian

Christian’s Story written by Wendy, Christian’s mom At 1:50pm on August 7th, 2013, Christian Galon Simpson decided to make his grand entrance into this world. After birth he cried, took a big swallow of amniotic fluid and his oxygen levels began to drop. He was rushed over to NICU and a breathing tube was inserted with […]

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Story of Inspiration

Story of Inspiration

~written by Alexa, Heart Hero~ As I sit here in my college’s library, I am trying to wrap my head around it all, attempting to discover my story. You see, everyone has a story of course, but when I was asked to actually put my own into words it was one of the most difficult […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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A Mother’s Love

A Mother’s Love

Motherhood can be a whirlwind of a journey, travelling through incredible joy, laughter, tears and sometimes heartbreak, as we watch our babies grow and develop into the people they will become. For one Heart Hero, the road to motherhood was an unexpected bump in her journey with CHD. Jodi Herron had been told that she […]

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Heart Goes On

Heart Goes On

written by Heart Hero Lauren Hi! I’m Lauren and I’m 11 years old. I just received my 2nd heart transplant on my 11th birthday-March 11, 2015. I was born with Hypoplastic Left Heart Syndrome and was treated at Arkansas Children’s Hospital. Helping a child live with HLHS requires a three-stage surgery usually done over the […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes, Heroes Helping Heroes, Organ Donation

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One Heart: Parker S.

One Heart: Parker S.

      Parker was born in Texas in 2007. As her parents prepared to take her home from the hospital, the pediatrician told them they’d like to do an echocardiogram of Parker’s heart to follow-up on a heart murmur they had detected. Within hours, Parker’s parents learned that their newborn daughter had a very severe […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Wyatt

One Heart:  Wyatt

    This handsome Heart Hero is Wyatt, from Elkhorn, Nebraska! Wyatt is eleven months old and born with several complex congenital heart defects (CCHD)- Atrioventricular Septal Defect (AVSD), Subaortic Stenosis, Left Ventricular Non-Compaction, and Complete Heart Block. He has also been diagnosed with Heterotaxy Syndrome (left atrial isomerism) with Polysplenia. AVSD is a malformation […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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