Archive for Heroes Helping Heroes

Heart Goes On

Heart Goes On

written by Heart Hero Lauren Hi! I’m Lauren and I’m 11 years old. I just received my 2nd heart transplant on my 11th birthday-March 11, 2015. I was born with Hypoplastic Left Heart Syndrome and was treated at Arkansas Children’s Hospital. Helping a child live with HLHS requires a three-stage surgery usually done over the […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes, Heroes Helping Heroes, Organ Donation

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The Heart of a Hero – Jaxson’s Story

  written by Carolyn Turner, Jaxson’s mom Jaxson Zane Turner was born on October 16, 2013.  From his birth, Jaxson suffered from severe reflux and aspiration issues.  At Jaxson’s doctor’s appointments, we brought it up with the pediatrician.  We were told it was nothing to worry about and that he would out grow it. My son […]

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Posted in: Awareness, CHD, Heart Angel, Heart Heroes, Heroes Helping Heroes, Organ Donation

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One Heart: Ryker

One Heart: Ryker

  Meet Ryker Lee. He is a Heart Hero from Gilbert, Arizona and is one year old.   Ryker was born with congenital heart defects called Tricuspid Dysplasia, Ebstein’s Anomaly, Pulmonary Artresia, and Atrial Septal Defect (ASD). Ebstein’s Anomaly affects the tricuspid valve and can cause blood to flow back into the heart instead of flowing […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, Heroes Helping Heroes, One Heart

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One Heart: Lorissa

One Heart: Lorissa

We are kicking off our One Heart Campaign with an amazing Heart Hero – Lorissa!  Lorissa is 19 and from Kearney, Nebraska. She has a heart defect known as Hypertrophic Cardiomyopathy, which means that Lorissa’s heart muscle became abnormally thick, restricting blood flow through her heart. Lorissa is a transplant recipient and received her new heart […]

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Posted in: Awareness, Heart Heroes, Heroes Helping Heroes, One Heart, Proclaim the Nation

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Proclaim the Nation for CHD Awareness

Destany Jones, mother of three, including her four-year-old Heart Hero, Madison, has started a petition for a national proclamation officially declaring February 7-14 as Congenital Heart Defects Awareness Week. The petition is making progress, currently standing at about 8,900 signatures, but it’s not enough. More than 90,000 signatures are still needed in order to receive […]

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Posted in: Advocacy, Awareness, Heart Heroes, Heroes Helping Heroes, Proclamation

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Hearts of Adoption

  written by Summer Spitz, Belle & Lyla’s mom It is my honor and privilege to introduce my two amazing daughters, Isabelle & Lyla! Both of my girls are Heart Heroes! I want to tell you their story from the beginning. In May of 2010, I saw a beautiful little girl who was photo-listed on […]

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Posted in: Adoption, Heart Hero of the Month, Heroes Helping Heroes

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A Mission of Hope: Part Two

written by Sondra Dubas Imagine having a baby born with a severe heart defect, but not having access to medical expertise to repair your baby’s heart or even make a proper diagnosis. Imagine traveling all over the country to find someone who can help you, someone who can give your child a chance at life. […]

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Posted in: Heart Heroes, Heroes Helping Heroes, Los Cabos Children's Foundation

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Heroes Helping Heroes

Calling all heroes big and small….  Have you thought about raising awareness for congenital heart defects (CHD) and fundraising for Heart Heroes but were not sure how or what to do?   Read about this amazing fundraiser for some inspiration and ideas: “What you do thunders so loudly in my ears I cannot hear what you say.” […]

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Posted in: Events, Fundraisers, Heart Heroes, Heroes Helping Heroes

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