Posts Tagged coarctation of the aorta

Little Miracles with a Big Heart: Heart Hero Super Duncan

Little Miracles with a Big Heart: Heart Hero Super Duncan

  written by Tom, Super Duncan’s dad Hello World!! The Whisinnand Family would like to introduce you to our little man, Duncan!! He is our first child, was born in September of 2011, and will change our lives more than we could have ever imagined.        According to doctors Duncan was growing and […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness, Heart Hero Cape, Heart Hero of the Month, Heart Heroes, Superhero Heart Run

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Superhero with a Special Heart

Superhero with a Special Heart

written by Amy, Alana’s mother Alana was born on July 22, 2011; three weeks before her due date and weighing 5 pounds, 11 ounces. She was a healthy baby (or so we thought) and didn’t even need to be in the NICU. We took her home two days later and she had no desire to […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Mighty Maximus

Mighty Maximus

written by Ashlen Johnson, Maximus’s father It has been almost 4 years now since the pediatrician first heard the heart murmur. Thinking about it now is pretty remarkable. We had no idea the journey we were about to embark on. Our son Maximus was a growing young kid, in the 90th percentile of everything. We had […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Unmapped Territory: Evelyn & Ethan’s CHD Journey

Unmapped Territory: Evelyn & Ethan’s CHD Journey

                      written by Missy McDermott, Ethan & Evelyn’s mom When Keith and I married seven years ago in July of 2009, we had a path mapped out in our minds of what we’d be adventuring through together as husband and wife and as future parents.  We […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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The World is Your Oyster: Heart Hero Zella Pearl

written by Tammy Denberg, Zella Pearl’s mother Our little miracle baby Zella Pearl was born on 11/20/15 weighing 8lbs 6oz.  She is our little miracle baby because first she is the only baby I have been able to carry to full term.  Lucas and I have battled with infertility for several years and at this […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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One Heart: Duncan

One Heart: Duncan

    Duncan is 3-years-old and was born with Coarctation of the Aorta and Bicuspid Aortic Valve. Coarctation of the Aorta is a congenital heart defect where the aorta is narrowed and a bicuspid aortic valve only has two valves, instead of the normal three valves. Duncan is a Heart Hero from Omaha, Nebraska. At […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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