Posts Tagged congential heart defects

Super Trooper Lukas

  written by Lukas’s mother Lukas Hoeft was born June 25th 2013 via c-section. A nurse at Providence Hospital in Novi, Michigan heard a heart murmur shortly after birth. His pulmonary valve was completely fused shut. The doctors were able to administer medication to keep his bypass open that typically closes shortly after birth. He […]

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Posted in: Awareness, CHD, Education, Heart Hero of the Month, Heart Heroes

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Courageous & Caring: Heart Hero Jackson

Courageous & Caring: Heart Hero Jackson

written by Stacie Orsini Jackson Thomas (J.T.) Sordi 07/10/03 – 07/26/03 In July of 2001, my husband Roman and I moved to Lewes, Delaware from Pittsburgh, PA to start our life together. He had just finished residency and we were ready to move on to the next chapter of our life. Shortly after our move, we […]

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Posted in: Awareness, CHD, Heart Angel, Heart Hero of the Month, Heart Heroes

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Superhero with a Special Heart

Superhero with a Special Heart

written by Amy, Alana’s mother Alana was born on July 22, 2011; three weeks before her due date and weighing 5 pounds, 11 ounces. She was a healthy baby (or so we thought) and didn’t even need to be in the NICU. We took her home two days later and she had no desire to […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Mighty Maximus

Mighty Maximus

written by Ashlen Johnson, Maximus’s father It has been almost 4 years now since the pediatrician first heard the heart murmur. Thinking about it now is pretty remarkable. We had no idea the journey we were about to embark on. Our son Maximus was a growing young kid, in the 90th percentile of everything. We had […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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A Bionic Heart of Gold

A Bionic Heart of Gold

written by Alaina, Lydia’s mother October 3rd, 2011 started like any other day. I went to work at an acute care hospital in Omaha where I was an occupational therapist. I took a late lunch to go to a 2 pm doctor’s appointment, keeping my pager with me for when I would return later in […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Unmapped Territory: Evelyn & Ethan’s CHD Journey

Unmapped Territory: Evelyn & Ethan’s CHD Journey

                      written by Missy McDermott, Ethan & Evelyn’s mom When Keith and I married seven years ago in July of 2009, we had a path mapped out in our minds of what we’d be adventuring through together as husband and wife and as future parents.  We […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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This is Her Year: Heart Hero Lorissa

written by Lorissa Roepke, Heart Hero I often ask myself, “What is the best thing to ever happen to me?”, “What is the worst thing that has ever happened to me?”. These two questions swarm my mind and I come up with so many different answers. I am preparing for when someone actually asks me […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes, Organ Donation

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Jackson – God Has Been Gracious

Jackson – God Has Been Gracious

  written by Chelsea Katelman, Jackson’s mother Jackson Andrew Katelman was born the morning of May 25, 2015. The birth went just as planned. The amount of love that you instantly feel for your little one is unexplainable. We were so blessed to be Jackson’s parents and welcome him into the world. As far as […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Beatz of Courage – Complete Atrioventricular Block

Beatz of Courage – Complete Atrioventricular Block

Beatz of Courage ~ Get CHD Informed Complete Atrioventricular Block (3rd-degree Heart Block) – A delay in the conduction of electrical nerve impulses that regulate the rhythmic pumping action of the heart.  Heart Block can occur congenitally or it can be acquired, from damage to the muscle or electrical system. Some CHDs can even cause Heart […]

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Posted in: Advocacy, Awareness, Beats of Courage, CHD, CHD Awareness Month, Heart Angel, Heart Heroes

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Beatz of Courage – Coarctation of the Aorta

Beatz of Courage – Coarctation of the Aorta

Beatz of Courage ~ Get CHD Informed Coarctation of the Aorta (COA) – The narrowing of the aorta between the upper and lower body branches. This causes a narrowing or even a blockage. Symptoms of COA are typically high blood pressure in the right arm and upper body with weak pulse in the lower body. Isolated […]

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Posted in: Advocacy, Awareness, Beats of Courage, CHD, CHD Awareness Month, Heart Angel, Heart Heroes, Organ Donation

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