Posts Tagged Heart Hero

Hope Shines Bright: Heart Hero Paisley

written by Joanna, Paisley’s mom   We had two children who came to us through the beauty of adoption, and we decided to add to our family in the Spring of 2014… when we saw Paisley’s little face, we fell in love with her, and we knew she was meant to be our daughter. We […]

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Posted in: Adoption, CHD, Heart Hero of the Month, Heart Heroes

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#Heartbeat: Heart Hero Ben

Written by: Amanda Lawson  I would like to give you a glimpse into why the heartbeat of my family is so strong. It all begins with the birth of a little boy, many years ago who was born with a broken heart. My husband was born with a Congenital Heart Defect called Transposition of the […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Super Trooper Lukas

  written by Lukas’s mother Lukas Hoeft was born June 25th 2013 via c-section. A nurse at Providence Hospital in Novi, Michigan heard a heart murmur shortly after birth. His pulmonary valve was completely fused shut. The doctors were able to administer medication to keep his bypass open that typically closes shortly after birth. He […]

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Posted in: Awareness, CHD, Education, Heart Hero of the Month, Heart Heroes

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Courageous & Caring: Heart Hero Jackson

Courageous & Caring: Heart Hero Jackson

written by Stacie Orsini Jackson Thomas (J.T.) Sordi 07/10/03 – 07/26/03 In July of 2001, my husband Roman and I moved to Lewes, Delaware from Pittsburgh, PA to start our life together. He had just finished residency and we were ready to move on to the next chapter of our life. Shortly after our move, we […]

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Posted in: Awareness, CHD, Heart Angel, Heart Hero of the Month, Heart Heroes

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Superhero with a Special Heart

Superhero with a Special Heart

written by Amy, Alana’s mother Alana was born on July 22, 2011; three weeks before her due date and weighing 5 pounds, 11 ounces. She was a healthy baby (or so we thought) and didn’t even need to be in the NICU. We took her home two days later and she had no desire to […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Fighting with Every Beat of Her Heart

Fighting with Every Beat of Her Heart

written by Mandi, Aubrey’s mom April 17, 2014 was the day our whole life changed. My husband, Paul, our oldest daughter Olivia, and I went in to find out the gender of our second sweet baby. We were so excited to find out that we would be adding another little girl to our family in […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Mighty Maximus

Mighty Maximus

written by Ashlen Johnson, Maximus’s father It has been almost 4 years now since the pediatrician first heard the heart murmur. Thinking about it now is pretty remarkable. We had no idea the journey we were about to embark on. Our son Maximus was a growing young kid, in the 90th percentile of everything. We had […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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A Bionic Heart of Gold

A Bionic Heart of Gold

written by Alaina, Lydia’s mother October 3rd, 2011 started like any other day. I went to work at an acute care hospital in Omaha where I was an occupational therapist. I took a late lunch to go to a 2 pm doctor’s appointment, keeping my pager with me for when I would return later in […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Unmapped Territory: Evelyn & Ethan’s CHD Journey

Unmapped Territory: Evelyn & Ethan’s CHD Journey

                      written by Missy McDermott, Ethan & Evelyn’s mom When Keith and I married seven years ago in July of 2009, we had a path mapped out in our minds of what we’d be adventuring through together as husband and wife and as future parents.  We […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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The World is Your Oyster: Heart Hero Zella Pearl

written by Tammy Denberg, Zella Pearl’s mother Our little miracle baby Zella Pearl was born on 11/20/15 weighing 8lbs 6oz.  She is our little miracle baby because first she is the only baby I have been able to carry to full term.  Lucas and I have battled with infertility for several years and at this […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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