Posts Tagged HLHS

Christian the Crusader

Christian the Crusader

written by Jacki Oleskey, Christian’s mother      Our journey began at a 20 week ultrasound that I was at because they had detected fibroids at a previous ultrasound. Before the doctor could even get to that part, we were told that there might be a problem with our son’s heart. We followed up the […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Fighting with Every Beat of Her Heart

Fighting with Every Beat of Her Heart

written by Mandi, Aubrey’s mom April 17, 2014 was the day our whole life changed. My husband, Paul, our oldest daughter Olivia, and I went in to find out the gender of our second sweet baby. We were so excited to find out that we would be adding another little girl to our family in […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Georgia Bean

Georgia Bean

written by Grandma Laurie, Georgia’s grandmother   Georgia Grace Weiner 4/20/2015 – 4/24/2015 Heart Angel   This is the story of a sweet little Heart Angel named Georgia Grace Weinert, affectionately known as Georgia Bean.  Georgia is my granddaughter.  Born on April 20, 2015 and passed on April 24, 2015.  Four little days and let […]

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Posted in: Awareness, CHD, Heart Angel, Heart Hero of the Month, Heart Heroes

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Heart Goes On

Heart Goes On

written by Heart Hero Lauren Hi! I’m Lauren and I’m 11 years old. I just received my 2nd heart transplant on my 11th birthday-March 11, 2015. I was born with Hypoplastic Left Heart Syndrome and was treated at Arkansas Children’s Hospital. Helping a child live with HLHS requires a three-stage surgery usually done over the […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes, Heroes Helping Heroes, Organ Donation

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One Heart: Brody

One Heart: Brody

    Meet Brody. This two-year old Heart Hero is from Panama City, Florida and has a CHD diagnosis of Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis, which is the thickening of the muscular lining of the heart chambers.  Brody has had the Norwood Procedure (first stage of three open-heart surgeries to repair HLHS) […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Jason

One Heart: Jason

    Jason is three years old and lives in Evans, Colorado. He was born with Hypoplastic Left Heart Syndrome (HLHS) (with an intact Atrial Septum). HLHS is commonly referred to as having “half a heart” because the left ventricle and aorta do not grow properly, and the right side of the heart tries to […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Wesley

One Heart: Wesley

  Wesley is a 22-month old Heart Hero from Amarillo, Texas. Wesley has Hypoplastic Left Heart Syndrome (HLHS), a complex heart defect in which the left ventricle and aorta are under-developed (hypoplastic). HLHS typically requires three surgeries to repair the heart- the Norwood operation, the Glenn shunt (or hemi-Fontan) procedure, and the Fontan procedure. Wesley […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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