Posts Tagged HRHS

Fighting with Every Beat of Her Heart

Fighting with Every Beat of Her Heart

written by Mandi, Aubrey’s mom April 17, 2014 was the day our whole life changed. My husband, Paul, our oldest daughter Olivia, and I went in to find out the gender of our second sweet baby. We were so excited to find out that we would be adding another little girl to our family in […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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One Heart: Ava

One Heart: Ava

    Ava Elizabeth was born on November 11th, 2012 with a genetic syndrome called 4Q Deletion.  With 4Q Deletion, part of the fourth chromosome is missing and can result in congenital heart defects as well as other symptoms.  Ava has Hypoplastic Right Heart Syndrome (HRHS) and Pulmonary Atresia.  She is also missing her left hand […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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