Posts Tagged Nebraska

Mighty Maximus

Mighty Maximus

written by Ashlen Johnson, Maximus’s father It has been almost 4 years now since the pediatrician first heard the heart murmur. Thinking about it now is pretty remarkable. We had no idea the journey we were about to embark on. Our son Maximus was a growing young kid, in the 90th percentile of everything. We had […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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A Bionic Heart of Gold

A Bionic Heart of Gold

written by Alaina, Lydia’s mother October 3rd, 2011 started like any other day. I went to work at an acute care hospital in Omaha where I was an occupational therapist. I took a late lunch to go to a 2 pm doctor’s appointment, keeping my pager with me for when I would return later in […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Unmapped Territory: Evelyn & Ethan’s CHD Journey

Unmapped Territory: Evelyn & Ethan’s CHD Journey

                      written by Missy McDermott, Ethan & Evelyn’s mom When Keith and I married seven years ago in July of 2009, we had a path mapped out in our minds of what we’d be adventuring through together as husband and wife and as future parents.  We […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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A Mother’s Hero – Heart Hero Taye

written by Cori Bumgardner, Taye’s mother In August of 2013, at our 20-week ultrasound, the doctor told us our baby had a heart condition called Transposition of the Greater Arteries. This news was shocking and scary, as the doctor explained that our baby would need open-heart surgery as soon as he was born in order […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Jackson – God Has Been Gracious

Jackson – God Has Been Gracious

  written by Chelsea Katelman, Jackson’s mother Jackson Andrew Katelman was born the morning of May 25, 2015. The birth went just as planned. The amount of love that you instantly feel for your little one is unexplainable. We were so blessed to be Jackson’s parents and welcome him into the world. As far as […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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One Heart: Wyatt

One Heart:  Wyatt

    This handsome Heart Hero is Wyatt, from Elkhorn, Nebraska! Wyatt is eleven months old and born with several complex congenital heart defects (CCHD)- Atrioventricular Septal Defect (AVSD), Subaortic Stenosis, Left Ventricular Non-Compaction, and Complete Heart Block. He has also been diagnosed with Heterotaxy Syndrome (left atrial isomerism) with Polysplenia. AVSD is a malformation […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Talia

One Heart: Talia

    Meet Talia! This five-year-old Heart Hero lives in Omaha, Nebraska and was born with Hypoplastic Right Heart Syndrome (HRHS).  HRHS is a rare congenital heart defect in which the right side of the heart is underdeveloped, including the pulmonary valve, right ventricle, and tricuspid valve. Talia’s CHD was diagnosed in-utero and at 29 weeks […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Teddy

One Heart: Teddy

Teddy is a five-year-old Heart Hero who was born with Ventricular Inversion- Left Transposition and Transposition of the Great Arteries (TGA). Teddy’s left and right ventricles were reversed (ventricular inversion) and the aorta and pulmonary were connected to the wrong vetricles (TGA).  Teddy lives in Lincoln, Nebraska with his family. He has undergone three surgeries […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: David

One Heart: David

    This five-year-old Heart Hero is David, from Heart Heroes’ hometown of Omaha, Nebraska! David was born with Transposition of the Great Vessels with four holes in his heart. This means that David’s pulmonary artery and aorta were switched within his heart (transposed), bringing blood to the lungs to get oxygenated, returning to the […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Duncan

One Heart: Duncan

    Duncan is 3-years-old and was born with Coarctation of the Aorta and Bicuspid Aortic Valve. Coarctation of the Aorta is a congenital heart defect where the aorta is narrowed and a bicuspid aortic valve only has two valves, instead of the normal three valves. Duncan is a Heart Hero from Omaha, Nebraska. At […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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