Posts Tagged open-heart surgery

Super Trooper Lukas

  written by Lukas’s mother Lukas Hoeft was born June 25th 2013 via c-section. A nurse at Providence Hospital in Novi, Michigan heard a heart murmur shortly after birth. His pulmonary valve was completely fused shut. The doctors were able to administer medication to keep his bypass open that typically closes shortly after birth. He […]

Continue Reading →

Posted in: Awareness, CHD, Education, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

Superhero with a Special Heart

Superhero with a Special Heart

written by Amy, Alana’s mother Alana was born on July 22, 2011; three weeks before her due date and weighing 5 pounds, 11 ounces. She was a healthy baby (or so we thought) and didn’t even need to be in the NICU. We took her home two days later and she had no desire to […]

Continue Reading →

Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

Mighty Maximus

Mighty Maximus

written by Ashlen Johnson, Maximus’s father It has been almost 4 years now since the pediatrician first heard the heart murmur. Thinking about it now is pretty remarkable. We had no idea the journey we were about to embark on. Our son Maximus was a growing young kid, in the 90th percentile of everything. We had […]

Continue Reading →

Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

Unmapped Territory: Evelyn & Ethan’s CHD Journey

Unmapped Territory: Evelyn & Ethan’s CHD Journey

                      written by Missy McDermott, Ethan & Evelyn’s mom When Keith and I married seven years ago in July of 2009, we had a path mapped out in our minds of what we’d be adventuring through together as husband and wife and as future parents.  We […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

The World is Your Oyster: Heart Hero Zella Pearl

written by Tammy Denberg, Zella Pearl’s mother Our little miracle baby Zella Pearl was born on 11/20/15 weighing 8lbs 6oz.  She is our little miracle baby because first she is the only baby I have been able to carry to full term.  Lucas and I have battled with infertility for several years and at this […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

A Mother’s Hero – Heart Hero Taye

written by Cori Bumgardner, Taye’s mother In August of 2013, at our 20-week ultrasound, the doctor told us our baby had a heart condition called Transposition of the Greater Arteries. This news was shocking and scary, as the doctor explained that our baby would need open-heart surgery as soon as he was born in order […]

Continue Reading →

Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

This is Her Year: Heart Hero Lorissa

written by Lorissa Roepke, Heart Hero I often ask myself, “What is the best thing to ever happen to me?”, “What is the worst thing that has ever happened to me?”. These two questions swarm my mind and I come up with so many different answers. I am preparing for when someone actually asks me […]

Continue Reading →

Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes, Organ Donation

Leave a Comment (0) →

Beatz of Courage – Atrial Septal Defect

Beatz of Courage – Atrial Septal Defect

Beatz of Courage ~ Get CHD Informed Atrial Septal Defect (ASD) –  A “hole” in the heart in the septum between the heart’s two upper chambers (atria). An ASD allows oxygenated blood to become mixed with unoxygenated blood. The oxygenated blood recirculates to the lungs without becoming further oxygenated. Most ASDs need to be closed by surgical repair, in […]

Continue Reading →

Posted in: Advocacy, Awareness, Beats of Courage, CHD, CHD Awareness Month, Heart Angel, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

A Mother’s Love

A Mother’s Love

Motherhood can be a whirlwind of a journey, travelling through incredible joy, laughter, tears and sometimes heartbreak, as we watch our babies grow and develop into the people they will become. For one Heart Hero, the road to motherhood was an unexpected bump in her journey with CHD. Jodi Herron had been told that she […]

Continue Reading →

Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

Leave a Comment (0) →

One Heart: Wyatt

One Heart:  Wyatt

    This handsome Heart Hero is Wyatt, from Elkhorn, Nebraska! Wyatt is eleven months old and born with several complex congenital heart defects (CCHD)- Atrioventricular Septal Defect (AVSD), Subaortic Stenosis, Left Ventricular Non-Compaction, and Complete Heart Block. He has also been diagnosed with Heterotaxy Syndrome (left atrial isomerism) with Polysplenia. AVSD is a malformation […]

Continue Reading →

Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

Leave a Comment (5) →
Page 1 of 2 12