Posts Tagged open-heart surgery

Little Miracles with a Big Heart: Heart Hero Super Duncan

Little Miracles with a Big Heart: Heart Hero Super Duncan

  written by Tom, Super Duncan’s dad Hello World!! The Whisinnand Family would like to introduce you to our little man, Duncan!! He is our first child, was born in September of 2011, and will change our lives more than we could have ever imagined.        According to doctors Duncan was growing and […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness, Heart Hero Cape, Heart Hero of the Month, Heart Heroes, Superhero Heart Run

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Heart Hero Abby Grace

Heart Hero Abby Grace

  written by Sarah, Abby Grace’s mom   Abby Grace is a hero in so many ways. She was born in China in August of 2014. We have two boys from Ethiopia and knew that we wanted to grow our family through adoption again and started looking at children that were on waiting lists. Many […]

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Posted in: Advocacy, Awareness, CHD, Education, Heart Hero of the Month, Heart Heroes

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Overcoming Obstacles: Heart Hero Jermaine

  Hello, My name is Jermaine Napier. I was born July 3 1986, and five months after my birth, was diagnosed with a Congenital Heart Defect (CHD).  Mine is  known as Shone’s Complex. Dealing with Shone’s, I endured two open heart surgeries, the first at five months and the second at three years old. Normally […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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#Heartbeat: Heart Hero Ben

Written by: Amanda Lawson  I would like to give you a glimpse into why the heartbeat of my family is so strong. It all begins with the birth of a little boy, many years ago who was born with a broken heart. My husband was born with a Congenital Heart Defect called Transposition of the […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Christian the Crusader

Christian the Crusader

written by Jacki Oleskey, Christian’s mother      Our journey began at a 20 week ultrasound that I was at because they had detected fibroids at a previous ultrasound. Before the doctor could even get to that part, we were told that there might be a problem with our son’s heart. We followed up the […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Super Trooper Lukas

  written by Lukas’s mother Lukas Hoeft was born June 25th 2013 via c-section. A nurse at Providence Hospital in Novi, Michigan heard a heart murmur shortly after birth. His pulmonary valve was completely fused shut. The doctors were able to administer medication to keep his bypass open that typically closes shortly after birth. He […]

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Posted in: Awareness, CHD, Education, Heart Hero of the Month, Heart Heroes

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Superhero with a Special Heart

Superhero with a Special Heart

written by Amy, Alana’s mother Alana was born on July 22, 2011; three weeks before her due date and weighing 5 pounds, 11 ounces. She was a healthy baby (or so we thought) and didn’t even need to be in the NICU. We took her home two days later and she had no desire to […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Mighty Maximus

Mighty Maximus

written by Ashlen Johnson, Maximus’s father It has been almost 4 years now since the pediatrician first heard the heart murmur. Thinking about it now is pretty remarkable. We had no idea the journey we were about to embark on. Our son Maximus was a growing young kid, in the 90th percentile of everything. We had […]

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Posted in: Awareness, CHD, Heart Hero of the Month, Heart Heroes

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Unmapped Territory: Evelyn & Ethan’s CHD Journey

Unmapped Territory: Evelyn & Ethan’s CHD Journey

                      written by Missy McDermott, Ethan & Evelyn’s mom When Keith and I married seven years ago in July of 2009, we had a path mapped out in our minds of what we’d be adventuring through together as husband and wife and as future parents.  We […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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The World is Your Oyster: Heart Hero Zella Pearl

written by Tammy Denberg, Zella Pearl’s mother Our little miracle baby Zella Pearl was born on 11/20/15 weighing 8lbs 6oz.  She is our little miracle baby because first she is the only baby I have been able to carry to full term.  Lucas and I have battled with infertility for several years and at this […]

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Posted in: Advocacy, Awareness, CHD, Heart Hero of the Month, Heart Heroes

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