Posts Tagged Pulmonary Atresia

Courageous & Caring: Heart Hero Jackson

Courageous & Caring: Heart Hero Jackson

written by Stacie Orsini Jackson Thomas (J.T.) Sordi 07/10/03 – 07/26/03 In July of 2001, my husband Roman and I moved to Lewes, Delaware from Pittsburgh, PA to start our life together. He had just finished residency and we were ready to move on to the next chapter of our life. Shortly after our move, we […]

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Posted in: Awareness, CHD, Heart Angel, Heart Hero of the Month, Heart Heroes

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One Heart: Ava

One Heart: Ava

    Ava Elizabeth was born on November 11th, 2012 with a genetic syndrome called 4Q Deletion.  With 4Q Deletion, part of the fourth chromosome is missing and can result in congenital heart defects as well as other symptoms.  Ava has Hypoplastic Right Heart Syndrome (HRHS) and Pulmonary Atresia.  She is also missing her left hand […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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