Heart Hero Kaiden

December’s Heart Hero of the Month
written by Amanda, Kaiden’s mom

Kaiden’s story began in the summer of 2009 when we went to our 20-week ultrasound with excitement and anticipation to find out the gender of our twins. Our appointment didn’t go exactly as planned and we left with the news that something could be wrong with our baby boy’s heart. Two weeks later a pediatric cardiologist confirmed and diagnosed him with a Congenital Heart Defect, Tetralogy of Fallot (TOF), and a month later discovered a second defect, Pulmonary Atresia (PA).

On December 4, 2009, our Heart Hero Kaiden and his sister Isabella were born.  Five short days later, our tiny 4 lb 12 oz baby boy endured his 1st open–heart surgery.  Recovery was rough at first. Pressures would not stabilize, and his kidneys took a few days to begin working after being on bypass.  But, by the grace of God, nine days after surgery Kaiden came home and was finally reunited with his sister.

Kaiden has a few other medical issues, but fortunately, his heart has remained relatively stable. His donor conduit has exceeded its lifespan of three to six years and has sustained his heart for ten years. Kaiden’s donor is a true hero.

Kaiden is an inspiration to our entire family.  He is an amazing brother, fabulous son, and loyal friend.  He has a caring soul with immeasurable concern and desire to help others in need. We are grateful to be parents of such an amazing boy.

Amanda, Heart Mom