Archive for Awareness

One Heart: Wesley

One Heart: Wesley

  Wesley is a 22-month old Heart Hero from Amarillo, Texas. Wesley has Hypoplastic Left Heart Syndrome (HLHS), a complex heart defect in which the left ventricle and aorta are under-developed (hypoplastic). HLHS typically requires three surgeries to repair the heart- the Norwood operation, the Glenn shunt (or hemi-Fontan) procedure, and the Fontan procedure. Wesley […]

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Posted in: Advocacy, Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Ashley

One Heart: Ashley

    Ashley is a Des Moines, Iowa native. This 10-year old Heart Hero was born with Tetralogy of Fallot (TOF), a congenital heart defect that refers to a combination of four related heart abnormalities. Ashley underwent her TOF repair at six months old, had a pulmonary valve placement at four years, and recently had […]

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Posted in: Awareness, Heart Heroes, One Heart, Uncategorized

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One Heart: Brent

One Heart: Brent

    To David & Grace, knowing their son is a Heart Hero means that each day is about family, friends, and faith. Brent is their daily dose of perspective and inspiration. Their five-month old Heart Hero, Brent Ethan, was born with Double Inlet Left Ventricle, l-GTA (corrected Transposition of the Great Arteries), Ventricle Septal […]

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Posted in: Awareness, CHD, CHD Awareness Month, Heart Hero of the Month, Heart Heroes, One Heart

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One Heart: Lorissa

One Heart: Lorissa

We are kicking off our One Heart Campaign with an amazing Heart Hero – Lorissa!  Lorissa is 19 and from Kearney, Nebraska. She has a heart defect known as Hypertrophic Cardiomyopathy, which means that Lorissa’s heart muscle became abnormally thick, restricting blood flow through her heart. Lorissa is a transplant recipient and received her new heart […]

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Posted in: Awareness, Heart Heroes, Heroes Helping Heroes, One Heart, Proclaim the Nation

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Proclaim the Nation for CHD Awareness

Destany Jones, mother of three, including her four-year-old Heart Hero, Madison, has started a petition for a national proclamation officially declaring February 7-14 as Congenital Heart Defects Awareness Week. The petition is making progress, currently standing at about 8,900 signatures, but it’s not enough. More than 90,000 signatures are still needed in order to receive […]

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Posted in: Advocacy, Awareness, Heart Heroes, Heroes Helping Heroes, Proclamation

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