Grayson was born on November 9, 2013 in Royalton, Minnesota. He was diagnosed with Pulmonary Vein Stenosis, Atrial Septal Defect (ASD), Long QT Syndrome, Pulmonary Artery Stenosis, Hypoplastic Right Ventricle, and Pulmonary Hypertension. Long QT Syndrome is a heart rhythm disorder that causes fast heartbeats. Pulmonary Vein Stenosis means that there was a blockage in the blood vessels that bring oxygenated blood to the heart from the lungs. Grayson went through many procedures in his short life. He had a balloon valvoplasty at three weeks of age, a VP shunt placed in his brain when he was four months old, open-heart surgery (sutureless repair) at 7 months), a G-tube placement when he was nine months old, and a tracheotomy also at nine months. Grayson fought his CHDs valiantly and gained his angel wings on September 9, 2014, when he was ten months old.

Having Grayson in their lives taught James and Katrina to live each day to the fullest, love unconditionally, and never take a moment for granted.   “Having a child that fights each day to live is the true definition of a hero.”

Grayson wore his heart hero cape once for photos at five months old. He was never given the chance to understand how much of a hero he was. His Heart Hero Cape is a symbol of his power and will be a item Grayson’s family will treasure for the rest of their lives.

Grayson’s family will be celebrating Grayson’s life every year on his birthday. It is a day they are able to celebrate the time they were given with him.

Read more about Grayson’s Heart and journey with CHD on Facebook: www.facebook.com/graysonsheart